Katie’s blog: What a central auditory processing disorder is and what to do about it

image002 I was at Walgreen’s the other day when an overhead announcer requested a price check on papaya tablets.  When I heard this, I had to pull over with my  shopping cart and pause.  What did they just say?   Popeye’s tablets?  Is that a euphemism for canned spinach?  Oh, wait a minute… they are saying “papaya”  tablets.

This kind of thing happens sometimes when you have a central auditory processing disorder (CAPD).  It’s not a bad idea to laugh about it…or at least laugh about it after some time has passed if the distortion caused an embarrassment for you.  After all, the distortions CAPD causes CAN be comical.

CAPD is neurological

What happened to me at Walgreen’s is a common occurrence for those of us who, for all the audiologists in the world, hear normally, but our brains distort what we hear.  CAPD is actually a neurological condition.  You may then ask, “Well, doesn’t everyone sometimes misunderstand what they hear?”  Of course they do; the difference is in proportion.  How frequently do you misunderstand what you hear?  Do you often miss important information that most everyone else seems able to process? Has your processing style significantly impaired you/interfered with your life?  Has your processing style adversely affected you socially and occupationally?   Are your grades at school slipping because you “miss” important points in lectures?

When sounds hurt

Having CAPD can feel a bit like old age setting in…about 75 years or so ahead of schedule.  People tend to think I am hearing impaired when in reality I sometimes can’t accurately process what I’m hearing the first time; subsequently I may “miss” things.  Yet and still, I test normally on hearing screens.  Airports, shopping malls, the Fourth of July parades and fireworks—these are harmless places for most people; for those of us with CAPD, these places at one point or another in life may have created serious stress since we can hear and experience them so differently from people whose brains normally process what they hear.  As a very young child, I could not tolerate the sound of fireworks and would cover my ears and scream.  The sounds were painful.  Imagine what you hear amplified by a factor of 10.

Processing speeds will vary

As a teen, I forced myself exposure to novel and often noisy situations to desensitize my “quirky” wiring.  Still, I used to think I was slow on the uptake and was sometimes labeled “ditsy” because of my differences in auditory processing, which can come across to others as being “slow.”  Of course, there is a grain of truth to the “slowness” part, but it does not reflect a person’s intelligence; rather, it reflects a slower auditory processing speed since CAPD brains simply take longer to process what’s heard.  I used to often ask people to repeat themselves, of course, and I even had a rule about it:  If after asking someone to repeat themselves a third time I still did not understand what they were saying (as I could sense they were getting impatient with me), I would just go ahead and PRETEND to hear them.  Now, you can imagine just how distorted stories might get in the retelling in the world of someone with CAPD…kind of like an endless game of “telephone.”  It’s no surprise that I disliked and avoided that game as a young child.  Just use your ears and stop being so dopey, they would say.  As if being dopey were a choice, I thought at the time.  More important– I knew that I wasn’t “dim”–something else was going on.  Little did I know at the time that my brain just worked differently in processing what I heard compared with other kids.

Closed captioning:  Not just for the hearing impaired and the elderly

For a while, before I knew I had CAPD, I rationalized that all people just mumbled and talked too fast.  To this day, I rarely ever understand the lyrics to songs on the first listening, much less the third. If I’m curious about song lyrics, I can usually find them if I search Google.  I find places like bars or other places with lots of stimulation going on stressful and even confusing when I am expected to process conversations with others in those settings.  I rely on closed captioning when I take in programs on television or the computer (I am so grateful for transcriptions-and I have to say You Tube is in dire need of better closed-captioned transcriptions).  I find I must ask people with unfamiliar accents and those who speak quickly to repeat themselves; and I’m no longer afraid to ask people to repeat themselves more than three times.  If there is background noise, the problem is compounded, and I must ask for patience and help and to perhaps relocate to a quieter spot.

An irony, or at least a “perceived” irony, in all of this is that I have been successfully employed in medical editing and transcription for many years.  This type of work requires listening to medical providers dictate audio on patients and then editing what is heard.  How is it I’m so proficient in this work living with CAPD?  It’s essential to understand that the work itself takes place in a highly-controlled setting, wherein I can listen and relisten as many times as I need if I don’t understand what is said the first time.  Because the voices are prerecorded and not live, it is not embarrassing to go back and listen again.  There is no one there to ask, “Please say that again.”  Plus, with repetition, I have become so familiar with providers’ voices (including accents, quirks, and nuances from all over the globe) that it is like a second language in which I have achieved fluency.

As for my teaching, all in-person tutoring sessions happen one to one in settings that tend to be quieter and more controlled, which is essential for students and tutors to succeed regardless of sensory processing differences that may exist.

Compensatory strategies

Figure out your strengths and find a way to pursue them.   A central auditory processing disorder undiagnosed might  feel limiting, but do not allow it to limit you.  Easy to say, I know. You need to find ways to create a life that is less overwhelming.   Learning compensatory strategies will allow you to thrive (and in places like noisy bars—survive) in a world where the majority processes information differently than you.  You are in the minority, which is maybe not where you’d prefer to be if given a choice.  However, as in other things you might encounter in life, here again you must accommodate to the majority way of doing things.  Know that you CAN adapt to the culture with practice and patience.  Most important–don’t ever allow anyone to put you down for it.  It would be like putting someone down for having diabetes or cerebral palsy.  Of course, there are settings that are obviously a setup for you to do worse and even fail (you might reconsider your idea of supplementing your income by becoming a bartender– unless you want to say you’ve REALLY overcome an obstacle; I cannot fathom a more disastrous career choice for someone with CAPD).  You need to also learn about where you perform your best and work to your strengths.  It’s not unlike the experience you may have had in high school where you tried to change your personality to fit into a group when really you needed to find the group that fit you.

Explain to people how you process information.  There is nothing wrong with disclosing your CAPD; the condition is more common than you might think.  The other thing is people need to learn about it.  And the average person does not know what CAPD is.  I tell most people about it in some way. I may simply tell them I process things a bit differently through hearing and leave it at that.  I do this straight away if we’re working closely together.  In my experience, people are usually respectful about it.  There will always be those rare few who may dismiss your condition as a “café syndrome” and who might be mean or impatient about it.  I say, do you really want such people in your life anyway?  If these are chosen relationships (e.g. they are NOT your bosses, co-workers, clients), stay away from them if you can.

Pursue work in settings that aren’t overstimulating to you or at least in settings that you can tolerate.  Most people who know me well put information in writing for me.  Our virtual society in which emails and texts are the new norm is a godsend and an empowerment to people with CAPD–or really to anyone who communicates better in writing than speaking.  I gravitate toward quieter, structured, more predictable and controlled settings, which helps me better process what I hear.  That might be a good workaround for you, too. I take solace in written communication and have always preferred it, although I have learned to become proficient in auditory processing on the phone and in face-to-face interactions.  I do very well one on one in live tutoring sessions.  Add two or three people to the situation, and it becomes more complicated to auditorily process all that is going on, although I have worked long and hard to adapt to it and can do it well.

Ask people for what you need.  What’s the worst that can happen?  It is important that you learn compensatory tricks, just as people with hearing impairments adapt to the world around them; otherwise you’ll end up shortchanging yourself and the world around you.  It is tempting to want to become a hermit when you’re met with misunderstandings and impatient reactions all of the time, but try not to isolate yourself. Remember–this is not your fault. It is your neurology. Do not blame yourself for it. You will find that processing the world around you does get easier with practice and exposure.  

Do ask people to please slow down their pace of speech.  Do ask them to repeat themselves or to speak louder (especially when there is background noise).  Don’t pretend to understand what you can’t process (even if you feel stupid asking, ask–and you might even educate people about your condition if it’s fitting).  Do limit your time in places where you feel overloaded (if you are like me, you’ll avoid or limit your time in noisy places like bars).  If you feel that you don’t want to disclose your CAPD, you don’t need to.  You can always just tell people that you have trouble hearing.  Who isn’t empathic about that?

Copyright 2013 In Writing, LLC  All Rights Reserved

 

Katie’s blog: ADHD and fatigue, part 2: when you can’t get your homework done

Do you lack the motivation and energy to complete tasks (especially “boring” ones)?  This can be a frustrating no-end battle for people with ADHD and other self-regulation spectrum conditions (autism is a condition that can impair your ability to get things done, too; sometimes autism, also neurological, is found to be the real culprit and not ADHD; and sometimes a psychologist will assess you and diagnose you with both conditions).  We’ll focus on ADHD for this blog.

 

If you live with a condition like ADHD, you know that you’re not dumb, lazy, or unwilling, even if other people might label you in this way. It might not take much physical/mental activity to exhaust you. ADHD is neurobiological, so you’re NOT imagining things.  You feel lousy and have trouble keeping up with life’s demands because you have a real condition. Read Driven to Distraction and get educated on ADHD.  If you have not sought a formal diagnosis, you might consider doing so now to get the help you need.  Even if you’re 40 years old, it’s not too late.  The right diagnosis will help you get the right accommodations at school and work.

 

So, what CAN you do to beat the fatigue and get yourself “unfrozen” to get things done?

 

Force yourself now to start AND keep a diary  

Why a diary?  You need to learn about yourself.  What are your energy patterns over time?  Recording how you feel each day in a diary should help you notice patterns in how your energy waxes and wanes over time. Each day, you would record in your diary the following data about yourself:

mood

energy

amount of sleep

diet

level of exercise/activity

life events/stressors on particular days  

for women, monthly hormone fluctuations

 

Here’s how your diary might look:

July 1, 2013:  Exhausted, irritable, low energy, 5 hours of sleep, ate too much leftover Mexican before bed, surfed the Internet until wee hours, sedentary day, boss yelled at me in front of co-workers, PMSing, my cat is throwing up and the vet is out of town

 

Now July 1 may be have been a washout from every angle—but at least when you look back on it in your diary, you will know why:  

 

  • You slept just 5 hours as not only did you go to bed too late, but also your late night Internet surfing habit caused insomnia.
  • Your stressful day threw you into a feeding frenzy which took place too close to bedtime.
  • You have premenstrual syndrome and you would feel irritable even if your day had gone swimmingly. 
  • You are worried about your sick cat.
  • You were humiliated by your petty, tyrannical and unpredictable boss.

 

Once you keep a daily record of these variables, you should begin to see some patterns after a few months.  Your reward—you should be better able to predict when to “schedule” more cognitively demanding activities like writing papers.  

 

I know: “scheduling” writing is not always practical and realistic for the day-to-day tasks, but for an ongoing project, such as writing a capstone, which can take months, knowing your rhythms and patterns can save your life

 

For example, you anticipate you will be “off” around the week of September 20 and you have a paper due the week of October 20. Armed with that knowledge, you might then plan to take advantage of those higher energy times to do the bulk of your research and writing; thus, you opt to do so during the first week of October, a time you have determined your pattern to be higher energy. 

 

This strategy doesn’t always work out right at first.  Be patient. With time, the diary method (if you can stand to write in it every day) should help you recognize your patterns of higher energy times.  The diary is not a panacea; it’s one more item to supplement you ADHD bag of tricks to help you cope with life’s demands.  

 

During the lower-energy week of September 20, when possible, you might aim to UNDERSCHEDULE to avoid burnout. Mind your body’s natural rhythms.

 

Beware, psychological toxins

If under scheduling is just too unrealistic, make it a priority to at least eat properly (please see below), sleep sufficiently, exercise as much as you can stand, follow a structured routine, and if you know toxic people/situations/places that trigger stress for you, avoid or minimize exposure if possible. 

 

Unfortunately we have reality. And most of us are stuck with at least some toxic elements as a fact of life, with overwork, co-workers, professors, and clients making demands of us, horrible bosses pulling fast ones, sudden stressful events thrust upon us, etc.

 

Why did I have such high energy on that particular day? 

Document the dates when you had those bursts of energy.  On what days did those witty insights, innovative ideas and eloquent words come to you so effortlessly?  How were those days DIFFERENT from the days when NO ideas would come? Did you quit a job you hated?  Fall in love? Write it down.

 

Some women find that about a week before menstruation, they have bursts of energy and get an enormous amount of work done, have crystal clear thoughts, and can brainstorm like no other time.  Make a chart of such things and document as much as possible to measure all variables. 

 

You are busy, but discovering your energy patterns will increase the chances that you will feel better.  You know your body best, and no one else can do it but you.

 

Sleep:   My friends are cheating, so why can’t I?

Regular sleep patterns with relatively little deviation over weekends are essential in managing your condition.  You know what happens when you stay up until 3 a.m. on a weekend when you are accustomed to an 11 p.m. bedtime during the work/school week.  Monday morning will be even more of an ordeal, and you’ll likely feel irritable and exhausted.  You will then be tempted to turn to heavily caffeinated and/or sugared fixes for a temporary boost and subsequent crash.

 

Caffeine mimics estrogen and can cause a host of troubles for you, whether male (how does the idea of developing “man breasts” strike you?) or female (endometriosis, breast cancer, cervical cancer, so much cancer, too many women’s troubles to list).   Your friends can cheat with little consequence, which is a depressing reality if you choose to see it that way–but it is one that you can manage.

 

Exercise:  Take 20 minutes out of your day for movement 

This is hardly news.  Exercise as much as you can stand. Partner up, if you’re the social type.  

 

 

 

Use your pet to motivate you to move. Most pet owners already know that pets are furry antidepressants–and when other strategies fail, pets can succeed in getting you out of your armchair.  

 

 

 

 

 

You also might use psychology.  Play a mind game with yourself and think of all the other things you do during your day that take only 20 minutes.  Then try to move.

 

Do not underestimate the value of incorporating music into your workout.  The right music might push even a hard-to-motivate crotchety grump to move at least a bit.  According to the music therapy literature, music “organizes and energizes” and helps patients “reach therapeutic goals.”  

 

Think I enjoy exercise?  Not without a strong push.  I use tricks to get off the couch.  And sometimes they work.  And, once I’m up and moving, I do as much as I can stand.  Sometimes I feel worse.  Most of the time, I tend to feel better and then get more done.

 

Under schedule your time

With ADHD and similar conditions, if you underestimate what you can do in a period of time, you will probably get it just right.  Imagine that a task will take 3 times as long to finish, and you may be pleasantly surprised to find you have finished it sooner. 

 

So sign up for 12 college credits instead of 18 (not exactly practical or realistic for everyone, but under scheduling may prevent you from failing courses, too).  You will probably perform better with less credits as other responsibilities vie for your time and attention.  Having ADHD and other self-regulation disorders can mean it might just take you longer to finish things than someone without these conditions.

 

Babysitting  

This strategy has been legendary for keeping people (especially easily distracted people) on task.  Why do bosses exist in most workplaces? In large part, bosses babysit.  When you go home, you sometimes need a sitter there, too.

 

As you did with exercising, elicit the help of a friendly babysitter in the form of a friend, a sibling, your mother.  Ask that person to sit with you when you have to do boring things.  Writing papers is the perfect example for some people.

 

Make sure you are seated at a clean, clutter-free table.  Maybe this babysitter has experienced similar struggles and would welcome a mutual babysitting session.  Advise them to bring a big stack of bills to write out and a checkbook to balance along with any homework they may have. 

The more dreadful and boring the task, the better.  Make a game of it; maybe the person who finishes the boring work first gets some kind of predetermined reward.  The point of babysitting is that it keeps you accountable to someone else.

 

Diet 

If you have ADHD or a similar condition, you may be familiar with having multiple sensitivities, and gluten intolerances are not uncommon to people who complain about an inability to focus and complete tasks.  A high complex carbohydrate, moderate protein, low simple carbohydrate, sugar free diet may be helpful. 

 

William G. Crook, MD, states “The poor performance of the inattentive, overactive child is often caused by improper food (fuel):  too much sugar and other junk food and insufficient amounts of nutrients, including carbohydrates, essential fatty acids, vitamins, and minerals.”

 

You may get relief from symptoms if you avoid or eliminate:

  • Refined white sugar
  • Artificial sweeteners
  • Preservatives
  • Caffeine
  • Phosphates

 

Replace artificial sweeteners with natural sweeteners:

  • Pure juice/fruit juice concentrates
  • Honey
  • Brown rice sugar
  • Stevia

 

You may also benefit from the use of supplements (deficiencies in the following may cause ADHD behaviors): 

  • B Vitamins
  • Folic Acid
  • Niacin
  • Pyridoxine
  • Thiamine
  • Iron
  • Magnesium
  • Calcium
  • Zinc
  • Taurine

 

The following product may be effective for some adults with ADHD:

Metagenics brand products for neurological health

Order this supplement through your local chiropractor.  You may also order Metagenics products on Amazon.com or other Internet vendors.

 

Other supplements that may be helpful:  Fish Oil

Remember when you were a little kid, and your parents or whoever nagged you to eat your fish because “fish is brain food”?  Well, maybe your parents weren’t so dumb after all. Essential Fatty Acid DEFICIENCY has been proposed to cause ADHD symptoms.  EPA (eidosapentaenoic acid) and DHA (docosahexaenoic acid) have been shown to benefit adults with ADHD.

 

The following product may be effective for some adults with ADHD:

Metagenics brand EPA-DHA Omega-3 Fish Oil

Order this product through your local chiropractor, from Amazon.com or other Internet sources. 

 

The Paleo diet

This is also known as the “caveman diet.”  Ask yourself if our ancient ancestors suffered with ADHD, chronic fatigue syndrome, autoimmune diseases, joint pains, arthritis, rashes, and other “modern” diseases.  

 

Now ask yourself if our ancestors ate cereal for breakfast.  The fact is, a protein called gluten which is found in grains causes inflammation.  Inflammation causes disease.  The “caveman” diet consists of foods that are whole, simple, and noninflammatory.

 

When you first learn about the Paleo diet, you will find it depressing as it seems there are few things you really CAN eat (at far as those foods that you may have been CONDITIONED to eat for much of your life because, at the time you were growing up, everyone harped about how “healthy” whole wheat bread was for you and that your bowels would be in DEEP TROUBLE without THAT kind of fiber–now you can tell those same people that wheat makes you feel crummy, fat and bloated). 

 

The good news about Paleo: you should notice better alertness, more energy and you may also experience weight loss.  Gradually, as you reduce your body’s inflammation, a process known as “deflaming,” you may be able to “cheat” occasionally and introduce other foods depending on how you feel and how much inflammation you decide you can live with.

 

What you CAN eat on the Paleo diet:

 

Not much:

  • Nuts and seeds
  • Fruits and vegetables
  • Meat, poultry and seafood

 

Foods that you SHOULD NOT EAT (they cause inflammation):

  • All grains and grain products (white and wheat bread, pasta, cereal, pretzels, crackers, any other product made with grains or flours from grains (most packaged foods)
  • Partially hydrogenated oils found in margarine, fried foods, most packaged foods
  • Corn oil, safflower oil, sunflower oil, cottonseed oil, soybean oil and foods made with these oils.
  • Soda, dairy, soy and sugar.
  • Meat and eggs from grain-fed animals.  It is almost impossible to follow THIS one.  Buy lean cuts of meat.

 

For a more detailed list of foods to avoid and non-gluten grains, go to www.csaceliacs.org.

 

For other nutritional information, read “Prescription for Nutritional Healing” by James Balch and Phyllis Balch.

 

Don’t sue me. I am not a medical practitioner and CANNOT guarantee results.  The above is intended to be informational and helpful to you.  It is not a substitute for the advice of a medical professional. Through experience and my own research, I have found the above strategies to be helpful.

 

All the best in completing your writing and beating your fatigue.

 

Copyright © 2013 In Writing, LLC. All Rights Reserved.

Katie’s blog: ADHD and fatigue, part 1: when you can’t get your homework done

Recently a freshman undergrad with inattentive attention deficit hyperactivity disorder (ADHD) asked, “How do I stay awake when I try to write my papers? I fell asleep again with my assignment last night, and now I’m running behind. This keeps happening to me.”

People with various types and degrees of ADHD find the condition makes it difficult to predict how they will function on a given day. The extremes of the spectrum range from “on” (functioning optimally) to “partially on” (functioning enough to do what is necessary in daily life) to “off” (barely functioning). The unevenness of symptoms can be terribly frustrating and makes it difficult to plan and carry out basic daily life activities.

Dr. Edward M. Hallowell, a child and adult psychiatrist in Sudbury, Massachusetts and founder of The Hallowell Center (a counseling and diagnostic center for people with ADHD and other conditions that affect concentration, attention, learning, and memory) and Dr. John J. Ratey, a professor of psychiatry at Harvard Medical School, co-authored the 1994 groundbreaking ADHD canon Driven to Distraction. Eleven years later, in Hallowell and Ratey’s Delivered from Distraction, the authors bluntly describe the unevenness of symptoms in their checklist of “disadvantageous characteristics” of ADHD:

Inconsistent performance despite great effort. People with ADHD do great one hour and lousy the next, and great one day and lousy the next, regardless of the effort and time in preparation. They go from the penthouse to the outhouse in no time!

Some with ADHD hesitate to make plans when they are on. They worry that when it comes time to follow through, they will feel too off to deliver. If only symptoms came as predictably as a 9-5 Monday through Friday schedule.

Part of the unpredictability is the many variables that can affect the severity of symptoms that go with neurobiological conditions like ADHD.

ADHD risk management: Ounces of prevention
Below is a series of questions to ask yourself if fatigue is getting in the way of completing your assignments:

How interesting to me is my writing topic?
This question might sound dumb to you and painfully obvious, but people with ADHD tend to have special interests that captivate their attention, sometimes to the point of overfocusing on their special interests–and away from the task at hand. When people with ADHD must write about a topic they perceive as less interesting or uninteresting, writing can seem impossible. Most people find it more difficult to write about topics of lesser interest, of course, but with ADHD, the problem intensifies.

How much sleep did I get last night?
At least 7-8 hours per night is the recommended amount for adults, although for teens it is actually closer to 9 hours per night.

What did I eat today? Did I eat today? When did I last eat? How much protein did I eat today?
Blood sugar fluctuations can have a significant impact on ADHD symptoms. People with self-regulation disorders often “forget” to eat when they get involved in certain activities—especially enjoyable ones. When you start the day, a high-protein breakfast is best. Eat what some people might consider “dinner” foods when you first wake up. For example, reheat a chicken breast from last night’s dinner. The worst things to eat are bagels, cereals, and muffins (“muffin” is a euphemism for “cake”). Eating refined carbohydrates is the equivalent of taking a sleeping pill, suggests ADHD expert Daniel Amen. You will likely nod off.

How much water am I drinking?
Mayo Clinic recommends eight 8-ounce servings of water per day.

Have I been under more stress in school/work/my personal life lately?
Stress tends to make most chronic conditions worse.

Are my hormones fluctuating?
Hormone fluctuations can worsen any chronic conditions women already have. Some research has claimed that premenstrual syndrome can include approximately 150 different symptoms. I don’t doubt it.

Am I exercising?
When you exercise, you tend to sleep better. With good sleep, your overall functioning tends to stabilize. The worst part? Getting the motivation to start exercising. For people with ADHD, transitioning from one activity to another can be difficult and even disabling on some days. That’s why many people with ADHD cannot multitask (I should qualify:  Cannot multitask and get things right).

Do I have small “bursts” of energy within a day where I am calm, focused and clear minded?
If possible, do small parts of your project/write notes about ideas when you feel those bursts of energy. You may not remember your ideas later, so write them down when they come to you.

Am I eating foods that cause inflammation?
People with ADHD are prone to coexisting allergies and food sensitivities. Eating foods that cause inflammation can also inflame behavior. Our next post will outline specific anti-inflammatory foods that are recommended for people with ADHD (and other conditions that affect self-regulation).

Please visit our site for part 2 of ADHD and fatigue, when we follow up with more information and other concrete suggestions to help you manage symptoms of fatigue.

Copyright 2013  In Writing, LLC  All Rights Reserved

 

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